Bloggers Unite for World Aids Day

Today, a call goes out to the blogosphere so that we can all join as one voice to support the cause, Bloggers Unite for World AIDS Day. In particular, I believe in this cause because it is so dear to me. As an actor and musician living in San Franciscan in the 1980’s, and later as a heroin addict, I knew so many people who acquired HIV—and I lost many friends to that disease, before there were any good treatments and when there was so much fear and (unwarranted) shame about the disease.
As I was thinking about World AIDS Day, the first person who came to mind was my longtime friend, Lori, who has been living with AIDS since the late 1980’s. Even though she acquired the disease before there were effective treatment plans, she struggled through some tough times and survived, likely due to her spirit and joy for life, as well as one amazing constitution. In fact, she is doing great today! The last time I spoke to Lori about how she was doing with AIDS, she told me that her viral load was undetectable. That news brought tears of joy to my eyes . . . and I thought back to how we reconnected after many years and how amazing it is that we are still friends.
You see, I lost touch with Lori during my years of heroin addiction—but I certainly never forgot about her. After entering treatment, I returned to Montana to attend college, as many of you know. One day, I was sitting in a coffee shop with my good friend Eddie Hemingway and we were talking about friends we missed. I mentioned to him that the one person I had regretted losing touch with was Lori Ayers, who lived in New York City.
Suddenly, Eddie’s face went white, as he looked at me and said, “I know a Lori Ayers in New York!”
Immediately, I got so excited! “Eddie—that has to be the same Lori Ayers,” I yelled with delight. “You and I could not possibly know two different Lori Ayers.
But our happiness quickly faded as Eddie’s face turned dark. “Well, I knew a Lori Ayers in New York—but I am pretty sure she is dead from AIDS.”
Wow. I felt as though I had been hit in the gut. Then Eddie told me more about Lori and her situation. I questioned him further on her status and I learned that he really didn’t know how she was doing because he had lost touch with her as well—but he had an address for her, so we immediately got a card and mailed it off to her. . . and to our delight and amazement, we got a return card from her! Talk about serendipity! Who could have imagined that I would reconnect with one of my best friends through a person who had met her while on a safari in Africa! You see, Eddie and I were not even friends when Lori and I were. Life is both strange and wonderful. Anyway, to make a long story short—Lori came to Montana that summer for a visit, we have been reconnected since that time, and we have become even better friends today.
Lori is one of the most amazing women I have ever known—and I have known her since the early 1980’s. She has an amazing mind—as quick as anyone I know, she is creative, she is talented, she is the most loving friend anyone could wish for—and most of all she has inspired so many people, including me. Today, she really is doing well—she is still beautiful, still razor sharp, still creative, still a loving friend. I have never once heard her complain about her disease—even though, at times, I know it has not been easy. I know for certain that she has undergone some painful procedures and had some illnesses that were truly horrible. Throughout it all, she has faced every challenge, head on—never giving up. And she has given of herself—she tirelessly traveled throughout the U.S. and the world, increasing awareness about AIDS to teenage kids. She has inspired and impressed many; people have done films on her, written articles about her, created artwork in her honor, yet she remains humble and giving. How many lives might have she saved by giving kids the tools they need to make better choices in their lives? It is impossible to say.
She is a true hero. When I am having a bad day—when my back is hurting, when I am thinking about some small petty problem in my own life, I think of Lori—and all of a sudden, my small complaints don’t seem too much to handle. She has been a source of such inspiration to me—more than she could possibly imagine. She is perennially on my gratefuls list—because I am so thankful to have her in my life. In 1987, I went to nearly twenty funerals in one year—I lost that many friends to AIDS in the 1980’s. How glad I am that Lori was not one of those friends—because the world has surely been a much better place these past twenty years with her in it.
Peace,
Melinda
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12/15/2008 9:38 AM
The Melindaville Blog wrote:
A few entries back, during my post for World AIDS day, I told a story of reconnecting with my old friend, Lori Ayers, through my new friend at that time—the fabulous artist and author Eddie Hemingway—who had met Lori while on an African Safari in the late 1980’s. What a stunning revelation—even for my crazy life. But giving it more thought, this is not the first time something like that has happened to me. One friend I have in particular, Mike Dingle, seems to pop up in circles everywhere I go. Originally, I met Mike in San ... -
12/15/2008 5:05 PM
The Melindaville Blog wrote:
A few entries back, during my post for World AIDS day, I told a story of reconnecting with my old friend, Lori Ayers, through my new friend at that time—the fabulous artist and author Eddie Hemingway—who had met Lori while on an African Safari in the late 1980’s. What a stunning revelation—even for my crazy life. But giving it more thought, this is not the first time something like that has happened to me. One friend I have in particular, Mike Dingle, seems to pop up in circles everywhere I go. Originally, I met Mike in San ... -
12/16/2008 1:42 PM
The Melindaville Blog wrote:
A few entries back, during my post for World AIDS day, I told a story of reconnecting with my old friend, Lori Ayers, through my new friend at that time—the fabulous artist and author Eddie Hemingway—who had met Lori while on an African Safari in the late 1980’s. What a stunning revelation—even for my crazy life. But giving it more thought, this is not the first time something like that has happened to me. One friend I have in particular, Mike Dingle, seems to pop up in circles everywhere I go. Originally, I met Mike in San ...













What a wonderful story. I felt like I "knew" her. There is such positive energy in this blog, Melinda. Do you know that? I read a few dozen blogs every week - I always leave this one feeling full of light and even happiness!
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Wow, Jen--that means so much to me. You have no idea! I respect your blog so much that this really does make me feel so good.
Melinda
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Like Jennifer has said there is a positive flow of life and love in this blog that draws me back to it. Although the personal stories you share do contain suffering I feel that the woman that you once were and the woman that you are now are both special and beloved friends. And now I feel that same love for Lori too. Today I also wrote about AIDs and teens. It's wonderful to hear about Lori's courage and her work. Thanks so much for being the woman you are and doing what you do Melinda. Love, tt
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Thank you so much for your kind words, Timethief--I really do appreciate it so much. I read your post on AIDS today--and left you a comment as well--there is still so much work to be done on AIDS and it really is so disheartening that here we are-25 years later and we still have so much misinformation, fear, and shame surrounding AIDS.
Thanks so much for supporting my blog--I really appreciate it.
Melinda
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Melinda -- This is a great tribute to your friend (who sounds pretty amazing) as well as a reminder to people that AIDS is still out there. I hope we never return to the days of so many deaths -- though those days are still going on in other countries. We are lucky to have pretty good access to AIDS care/pharmaceuticals in the U.S.
Jen and timethief are absolutely right -- your blog spreads joy and light.
Jennifer
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Hi Jennifer,
Yes--we are very lucky that we live in a society where there are available treatments for AIDS. You know, one of the reasons why Lori is still alive is that she was lucky enough to have good insurance that allowed her preventative care. Many of my friends who died had no insurance--and the medical care they had access to was so limited.
Thanks, as always for visiting--
Melinda
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What an incredible post, Melinda. Now I'm grateful to know about Lori Ayers and truly amazed the way you and your friend reconnected with her. This in conjunction with your Thanksgiving post made for powerful reading. I can't wait for your memoir!
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Hi Lydia,
It really was amazing when Eddie and I learned that we both knew the same person--at a point where the two of us weren't friends. That has actually happened to me a few times in my life, which really drives home how really connected we all are.
Thanks for stopping by--
Melinda
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